About

About Partners for Better Care

Welcome to a collaborative platform spearheaded by patient champions and disease advocacy entities, all fervently envisioning the future of healthcare. Comprising our ranks are both patient advocacy organizations and a multifaceted ensemble of healthcare professionals, including industry stalwarts and payers. Together, with policymakers by our side, we aim to craft optimal solutions for the ever-evolving healthcare challenges of our age.

Representing the voices of over 100 million patients, each grappling with an array of chronic and acute conditions such as autism, our belief is steadfast: Every American deserves unhindered access to care, vital not only for their health but also the well-being of their loved ones..

Our Mission

At the heart of our mission is our nonpartisan Patient Charter, a collective endeavor of the Partners for Better Care community. This Charter is not just a document but a visionary roadmap for the future of healthcare. As we embrace this Charter, we hope to ignite a nationwide dialogue, supported by millions of patients and the foremost entities in healthcare.

Drawing inspiration from our Patient Charter, we curated a set of healthcare principles in 2017. As ambassadors of patient-centered care, the Partners community is honored to offer its expertise to policymakers and innovators alike. Our commitment is unwavering: We will persist in our collaboration with Congress, the Administration, and other healthcare counterparts to champion policies that promote holistic, patient-centered care for all.

The American Healthcare Paradox

The US healthcare landscape boasts unparalleled medical expertise, yet, countless Americans find quality care beyond their reach. Vital elements like affordable, patient-focused care; innovative techniques; preventive services; and comprehensive treatment solutions for every conceivable medical scenario are paramount. It’s a concerning paradox that while more Americans have healthcare coverage today, their out-of-pocket expenses, from deductibles to cost-sharing, have skyrocketed. Moreover, intricate benefits structures and restricted healthcare provider networks complicate access to quality care.

After rigorous policy analysis and public opinion research, we’ve distilled our policy priorities into six pivotal focus areas, which are:

  1. Predictable and manageable out-of-pocket expenses, with minimized cost shifting.
  2. Transparent information on both cost and quality.
  3. Adequate provider networks.
  4. Rational healthcare system costs.
  5. Equitable and consistent access to treatments with just formulary structures.
  6. Efficient, transparent, and patient-friendly appeals processes.

With these focus areas at the helm, Partners for Better Care relentlessly advocates for a healthcare future anchored in patient-centric quality, transparency, accessibility, and affordability. We invite you to join us on this transformative journey.